Soak and Seal, repeat. Soak and Seal, repeat. Soak and seal, repeat!

Like I mentioned in the previous post, we have learned a ton and have been doing A LOT of treatments. I can't believe the improvement on Morgan's skin. It's fantastic. What we do is soak her in a bathtub for 20 minutes, with wet towels all over her and then immediately put TONS of topical steroids all over her body. And I mean tons, we have gone through the amount of topical steroids we usually go through in a year, in the past day and a half. I expressed awe about this but what the doctor said made sense, why are you putting them on if they don't work. It's better to get the situation under control so you don't have to use them again. Aha, that's why you went to medical school, Dr.! Then we put wet pajamas and wet tube socks on her arms and legs and then dry pajamas. Then she sits for 2 hours (kind of hard to do anything with your hands wrapped up). We're doing three of these treatments per day until her skin is clear. We even just did one in the hotel and she'll sleep in the wet pajamas. (Luckily they prescribed a sedative for the next couple of days, but as I'm typing, I'm not sure it's doing the trick. She's kind of acting like a drunk college kid. Great.)

We're also in the phase of information gathering, meaning figuring out all that is going on in this little body. A big emphasis is being placed on her asthma, which is something we've never worried about before, but our attending doctor brought up an excellent point. If her asthma isn't treated well and she does have an allergic reaction from food, she is much more likely to have difficulty breathing and then, well, we won't go into that. So, needless to say, I'm really happy for this emphasis. Food allergy testing was today and tomorrow. We aren't hopeful that we will come back with any foods, meaning that she'll be "food challenged" and declared to be free of that allergy. The doctor seemed to think that her reactions have been the "real deal," meaning until there's a cure, we'll continue our hyperviligence!

This was after the sedative was given last night. She was exhausted to begin with, so the sucker really did the trick. (Notice the side rails are up?) She was goofy and this morning said she was super dizzy. BUT, she slept through the night for literally the first time in a couple of years and was so proud of herself that she didn't scratch herself.

Snug as a bug in a rug. During the day wraps, her face was covered as well, with openings for her eyes and mouth. Can't say Ms. M was a fan of that! There is no way that Ryan and I could have convinced her to get wrapped like this at home, even with her being on her "better" behavior for the nursing staff, she threw quite a major fit when we first did it. I have to admit, I would have felt pretty claustrophobic and uncomfortable as well. But I think she's seeing the benefits, so we've had a lot less resistance!